Sidenote- before we get into this- Happy Mother's Day!!! I will do a mother's day post soon- however when you read what is going on, well I am sure you will understand why I have not done a great update recently.
In the past month or so I have noticed something a little off about Ivy's eye. She had a cold so I thought it was a sinus thing, then I thought a tear duct thing, but to be honest it was so minor that I know it crossed my mind, but I was not thinking about it. Then I looked at some pictures from Easter and really saw that the shape of her right eye seemed asymmetrical and it bothered me. Upon looking at her eye and feeling around I felt a small lump. Again I assumed it was a sinus or tear duct, but it bugged me enough that I took some pictures and emailed our pediatrician. Her 2 month well visit was scheduled for a week later- 5/5- so we were going to talk about it then.
Pictures- you would never notice anything weird about her eye
However if you are really looking- and I took pictures trying to capture the bump- you can see what I am talking about above the inner corner of HER right eye. This first picture makes it look huge- but obviously seeing the prior pics it is not this big at all.
We went to the dr for her appt and he looked, wasn't sure what it was, but figured tear duct. By some sort of divine intervention, the child he was seeing after us had a mom who was a pediatric opthalmologist- so she took a peek. She told us she thought it was a hemangioma and to go to CHOP (children's Hospital of Pennsylvania)
So on Monday- 5/9- we went to the head of Opthalmology who is also an oculoplast (eye plastic surgeon).
They took a look, took some pictures, and gave us some ideas for what it could be.
1- A dermoid cyst- this would be the best answer as all it would be is a small plastic surgery to remove it. He said this is what it felt like, but since we think it has grown that makes him lean towards option 2
2- A Capillary Hemangioma- a bunch of blood vessels together. This grows rapidly for 6-12 months. This is a good option for what it is in that hemangiomas go away on their own and are not a serious health risk. However due to location by her eye and the growth, it could effect her vision, causing blindness, so we would have to treat it. Treatment could be some medications, creams, steroid shots, surgery, etc. It would be addressed once the extent was known and it is figured out.
3- Cancer. It is hard for me to even type this option out without wanting to vomit. However this is a very, very, small possibility as they said she isn't in the right age range and really felt it was #1 or 2
4- Her brain poking through a hole in the skull- which he said sounds bizarre but is easy to fix.
After all this info they told us we could do an MRI in a month or two to figure it out unless we notice rapid growth. Eric and I said no way are we waiting after hearing those words- so we scheduled an MRI.
Today was the MRI. It was horrible- but good all at once. It was just a sucktastic day all around, but for what it was- the day went really really well.
Because Ivy would have to be sedated for the MRI- we had to cut off her food after 10am. The MRI was supposed to be 2pm, but they didnt take her until 3:10. That is a LONG LONG time to deprive an infant of food. She slept a lot of it, had a meltdown, then got her IV of fluids which made the meltdown crazier. This was actually a good bad thing b/c she passed out sleeping from being so upset and slept until they sedated her.
Now we have to wait until Monday 5/16 for the follow up to hear the results. Right now we are just helping Ivy recover from her ordeal today. Fortunately the recovery from sedation seems to be sleep- that's pretty easy. I will be setting my alarm tonight to wake to feed her at her normal times just in case she is too groggy to get up on her own, she missed enough food today.
She got to wear a purple hospital gown with spaceships on it!
When she first woke from her nap she was happy as can be.
They put these heat packs on all her limbs to help her veins show so the IV administration would go smoothly
Then there is a lack of pictures b/c it was a lot of screaming of hunger and pain and fear while she was hungry and got the IV inserted into her little hand.
After getting her calm- can you tell I was a bit upset as well. Horrible feeling
Lastly- my little baby all sedated and hooked up to machines
Groggily waking up after the MRI
So please send us good thoughts, warm fuzzies, prayers, good juju, whatever it is you've got, that this turns out to be something that is not a big deal and an easy fix.
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