The Dr called- it is a cavernous capillary hemangioma. That means it is a cluster of blood vessels that will grow rapidly but has no harmful effects and goes away on its own. The downside is she may have a large bump for a year or two, but over the other options- we will take it.
Based on its location by her eye, we do have to treat it. If it grows too large it could impede her vision development and she could suffer vision loss. Right now it is not large enough to do so- but we are going to treat it in hopes it does not get any bigger.
I am working on getting an appointment with a dermatologist at CHOP. Our opthamologist has to clear the way though because pediatric dermatologists are apparently in high demand- I was told they have no appointments for new patients left at all in 2011. We are in a time crunch with this though, not too much of one- but we can't wait that long and let it grow. So hopefully our dr can get us in with the derms. The course of treatment they think we are going to go with is to put her on propanalol- a beta blocker (high Blood Pressure med). We will have to stay in the hospital for a day or two just to make sure the drug has no effect on her vascular system, and proceed from there.
We don't have more details about it- just this brief overview- but are super super happy that it is a minor thing that we can easily address and that surgery is not needed!
Friday, May 13, 2011
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